Resources

We know how complicated drug pricing can seem, especially to those of us who have had personal experience with the healthcare system but little policy experience. Below, you’ll find various resources created by the (Health) Policy Lab to help navigate some of these concepts and systems. We will be adding new content to this database regularly. If you have any questions or comments, please contact us at admin@generationpatient.org.

Patents

A brief explanation of patent thickets by one of our 2024 Health Policy Scholars, Adam Koch.

A brief explanation of "pay-for-delay" tactics by one of our 2024 Health Policy Scholars Casey Doherty.

A brief explanation of patent thickets by one of our 2024 Health Policy Scholars, Giovanna Burno.

Patent Reform Primer: An introduction to key terms and patent abuse practices used by pharmaceutical companies.

 

Drug Pricing

Prescription Drug Affordability Board (PDAB) Primer for patients and patient groups to advocate effectively for lower drug prices at the state level.

Drug Pricing Glossary: This is a resource you can refer back to as new terms are added! 

Who are the main players in drug pricing? This resource can help you understand the basics of who different players in drug pricing are and what roles they play.

State Drug Pricing: Three policy solutions some states have considered/ implemented to address drug pricing issues.

Health Economics

Infographic: What is a Health Technology Assessment (HTA)?

Forum: Fundamentals of Health Economics

Forum: Applications of Health Economics

 

Letters, Commentaries, & Tutorials

Click on the above folder to access a centralized drive with all of our letters, written commentaries, and policy testimonies.

Write an Op-Ed: A guide with information and additional resources on writing an op-ed.

Write a Letter to the Editor: A guide with the basic information and resources to write a letter to the editor.

 

Other Organizations & Resources

We encourage you to check out the following organizations that have made incredible progress in the fight for access to medicines.

  • Doctors for America

    Doctors for America mobilizes doctors and medical students to be leaders in putting patients over politics on the pressing issues of the day to improve the health of our patients, communities, and nation.

  • Patients for Affordable Drugs (P4AD)

    The purpose of P4AD is to promote health by raising the voices of patients and their families on the causes of high drug prices and to help educate them about how they can be a part of the discussion and work to make reforms to the US system of drug pricing in the private and public sectors.

  • Initiative for Medicines, Access & Knowledge (I-MAK)

    I-MAK advances solutions to address structural inequity in the medicines system through research, partnerships, and education. I-MAK illuminates where market failures and structural inequity cost lives, and create inclusive dialogue to advance solutions for health equity.

  • Universities Allied for Essential Medicines (UAEM)

    Universities Allied for Essential Medicines (UAEM) is a global movement of university students organizing on their campuses and beyond to ensure that publicly funded medicines and medical innovations are affordable and accessible to the people who need them.

  • The National Academy for State Health Policy

    The National Academy for State Health Policy is a nonpartisan forum of policymakers throughout state governments, learning, leading, and implementing innovative solutions to health policy challenges.

  • Families USA

    Families USA is a leading national, non-partisan voice for healthcare consumers dedicated to achieving high-quality, affordable healthcare and improved health for all.

  • T1 International

    T1 International is a non-profit led by those impacted by type 1 diabetes for people with type 1 diabetes. We support local communities by giving them the tools they need to stand up for their rights so that access to insulin and diabetes supplies becomes a reality for all.

  • Connecticut Health Policy Project

    The Connecticut Health Policy Project is a non-profit, non-partisan research and educational organization dedicated to improving access to affordable, quality health care for all Connecticut residents.